The working year 2023 for SSUUBO started on the first day of January. The entire project team moved to Buikwe, Uganda for three weeks. The number of patients in our care will soon reach the number of 400. Such a high number brings with it new challenges. We are therefore strengthening the local Ugandan team and further improving the quality...
September working trip to Uganda
A few days ago we returned from our second stay in Uganda this year.
Today's visit by Mr Charles Kyagi, Uganda's National Coordinator for Sickle Cell Anaemia at the Ministry of Health. We are proud that we were able to "shock" him with the extent and quality of care we provide to our patients. He immediately rated our program as the best in Uganda, absolutely above the level of the largest medical centers in...
Psychological support for sickle cell anaemia patients and their families is a very important part of our comprehensive care.
Today was an important day for our clinic and SSUUBO. A week ago, Mrs. Evelyn Harlow, Sickle Cell Program Officer from the Ministry of Health Uganda and Sickle Cell Network Uganda visited us to show her our work.
Haematology training of laboratory staff
We could not have developed the project without volunteers. Renata Horáková, head of the morphology-cytology laboratory at the Institute of Hematology and Blood Transfusion in Prague, decided to spend her "regular vacation" working. She moved to the laboratory in Buikwe, where she trains staff in the evaluation of haematological specimens.
December stay at the clinic
After two months, we returned to the clinic for the first week. And we worked up a good sweat! In just 2 months since our last visit, we have added 40 new sickle cell anemia patients to our program and we now have 10 more children with hydroxyurea treatment. We have performed cerebral artery blood flow testing on all new...
We are 3 months into our sickle cell anaemia project in Uganda - what we have achieved.
Stroke risk investigation underway
In May 2021, we received a grant for a new ultrasound machine from Novartis Czech Republic. The main purpose of the ultrasound machine is to perform regular examination of blood flow through the cerebral vessels in children with sickle cell anemia.
The traditional method for detecting sickle cell anaemia is the so-called solubility test. However, this test does not distinguish between patients with sickle cell anaemia and mere carriers of the gene for the disease. The solubility test is also a false negative in newborns and young infants. Unfortunately, only very expensive tests such as...